From my mom's 'journal':
28 October, 2011
Hope has been very quiet today, so far. Most of the morning Caeli has been on the couch telling Hope stories. Here is a pic:
They are napping there now. Caeli and Tyler are so loving it is wonderful to see.
September 21, 2012
September 19, 2012
HOPE'S STORY, PART 12: "DEAR DIARY"
23 Oct, 2011
Today Hope turned one month old. What a little fighter she is. Or maybe she is still soaking up the love that Tyler and I and everyone around her does their best to show.
Today was a good day for her. We didn't have to give her any of the oxycodone. She was relatively peaceful. Tyler left at around 8am to go set up chairs for Stake/Regional Conference (church meeting) and came home soon after.

Today Hope turned one month old. What a little fighter she is. Or maybe she is still soaking up the love that Tyler and I and everyone around her does their best to show.
Today was a good day for her. We didn't have to give her any of the oxycodone. She was relatively peaceful. Tyler left at around 8am to go set up chairs for Stake/Regional Conference (church meeting) and came home soon after.

September 18, 2012
HOPE'S STORY, PART 11: "IF I SHOULD DIE BEFORE I WAKE"
The closing entries from my mom's journal:
October 26, 2011: Hope's cold is gone, if it was a cold. She was peaceful most of the day today.
October 27, 2011: Another rough night for Hope last night. She was breathing with difficulty most of the night. When Hannah and I arrived in the morning she was still laboring to breathe. At times her tongue would pull and her jaw would drop down to pull in air. Caeli commented that she looks more blue today. They are keeping eye drops in her eyes to keep them hydrated.
October 26, 2011: Hope's cold is gone, if it was a cold. She was peaceful most of the day today.
October 27, 2011: Another rough night for Hope last night. She was breathing with difficulty most of the night. When Hannah and I arrived in the morning she was still laboring to breathe. At times her tongue would pull and her jaw would drop down to pull in air. Caeli commented that she looks more blue today. They are keeping eye drops in her eyes to keep them hydrated.
September 17, 2012
HOPE'S STORY, PART 10: "A GOOD WAY TO HAVE HEAVEN IN YOUR HOME"
Here are a few more posts from my mom's journal...
***
October 22, 2011
This morning Hope had a bath:
This evening she did not like it when Caeli was washing the dried oxycodone off her lips, so she kept swatting at Caeli with her hand.
September 4, 2012
HOPE'S STORY, PART 8: "I PRAY THE LORD MY SOUL TO KEEP"
From my mom's 'journal':
October 18, 2011:
Yesterday we got to spend another sacred day in the presence of a divine being. In the morning, Tyler's parents visited with sweet Hope, so I was able to get some university work done.
Just after noon, Caeli and Tyler picked me up to go to Temple Square. First we walked around the temple grounds soaking in the wonderful spirit inspired by the temple. An older sister missionary approached us to ask about Hope. When she saw how tiny Hope was, she asked her age and wondered if she was a premie. (That is what all the people in Temple Square thought when they saw her. Hope probably weighs 4 pounds or less now.) When Caeli told her that Hope was sick, the sister suddenly realized that she was in the presence of a sacred spirit. Her eyes filled with tears of joy as she expressed her awe.
October 18, 2011:
Yesterday we got to spend another sacred day in the presence of a divine being. In the morning, Tyler's parents visited with sweet Hope, so I was able to get some university work done.
Just after noon, Caeli and Tyler picked me up to go to Temple Square. First we walked around the temple grounds soaking in the wonderful spirit inspired by the temple. An older sister missionary approached us to ask about Hope. When she saw how tiny Hope was, she asked her age and wondered if she was a premie. (That is what all the people in Temple Square thought when they saw her. Hope probably weighs 4 pounds or less now.) When Caeli told her that Hope was sick, the sister suddenly realized that she was in the presence of a sacred spirit. Her eyes filled with tears of joy as she expressed her awe.
September 3, 2012
HOPE'S STORY, PART 7: "OCTOBER: THE MIDDLE"
From my mom's account...
October 15, 2011:
Yesterday Hope was three weeks old...Hope had more painful-looking scowls yesterday, so they gave her more oxycodone. Caeli and Tyler took us out to eat at a cheesesteak place and it was really good. We got the food as take-out and ate it in the car together so that Hope did not need to go in the restaurant.
This morning we took the kids to Gardner Village and then back to John and Celeste's (Caeli's aunt and uncle) to meet Tyler, Caeli and Hope. We sat outside on the patio while John, Tyler and Asa (Caeli's nephew) stacked wood and then played like crazy in the yard. Hope slept peacefully on Caeli's lab thrilling us all with her smiles and her gaze when she opened her eyes.
Tyler changes her diaper and dresses her now because Caeli cannot bear to see her...body. Tyler is so wonderful with Hope and she gives him the biggest smiles. Hope is starting to look bluish around her eyes and nose and her hand movements are less and slower. She did lightly grasp my finger with her hand a couple times tonight. She has very long, dainty fingers. Her eyes are the most beautiful almond-shaped eyes that look right at her Mom or Dad and today she looked right at Asa. It is a sacred experience to be in her presence. We love you, Hope!
October 15, 2011:
Yesterday Hope was three weeks old...Hope had more painful-looking scowls yesterday, so they gave her more oxycodone. Caeli and Tyler took us out to eat at a cheesesteak place and it was really good. We got the food as take-out and ate it in the car together so that Hope did not need to go in the restaurant.
This morning we took the kids to Gardner Village and then back to John and Celeste's (Caeli's aunt and uncle) to meet Tyler, Caeli and Hope. We sat outside on the patio while John, Tyler and Asa (Caeli's nephew) stacked wood and then played like crazy in the yard. Hope slept peacefully on Caeli's lab thrilling us all with her smiles and her gaze when she opened her eyes.
Tyler changes her diaper and dresses her now because Caeli cannot bear to see her...body. Tyler is so wonderful with Hope and she gives him the biggest smiles. Hope is starting to look bluish around her eyes and nose and her hand movements are less and slower. She did lightly grasp my finger with her hand a couple times tonight. She has very long, dainty fingers. Her eyes are the most beautiful almond-shaped eyes that look right at her Mom or Dad and today she looked right at Asa. It is a sacred experience to be in her presence. We love you, Hope!
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